I had to think about this for a minute, I was typing out one thing, but I am going to use that in a later day/post.
I love that I am a good listener, and (generally) don't give people advice, or try to "fix" things. I know this probably doesn't seem like it on Facebook, but generally, I don't. If someone wants to talk, I listen, while I sometimes bring things back to myself (which, by the way, I have been doing less of, unless I think that it helps them), I really just listen, and don't tell them what to do (unless they ask, of course). I think I am a pretty easy person to talk to. I just want to be a friend to them, and be there for them.
Friday, November 12, 2010
Vancouver Trip, and new job
Last Saturday was the funeral of my friend. It went well (as well as funerals can go, I guess), and the church was nearly full w/ friends and family. Our pastor did a great job, and her husband and several people did tributes, and her daughter sang a song. I don't know why, but I never cried. It really bothered me. I did cry a bit at the end, but that was all. I was very sad, of course, and I am sad because I will never see her or talk to her here on earth. It has really hit our church, especially our pastor and his wife very hard. No one can understand why it happened. It will be a long road for her family, especially her daughters.
We did end up having the "Light the Night" party the previous Sunday at our church. We thought of not doing, b/c of our friend dying, but the girls' dad said that the girls were looking forward to it. We do this every year, to encourage the kids to come to the church instead of trick or treating. I am sure that some kids go out T&T-ing anyway, but at least it's a place for them to come afterwards. I wasn't going to dress up, but I decided to in the end. About half of the people (adults) dressed up. I ended up going as a ladybug. It was fun getting the costume together, but I wish I had more money to a "real" costume..oh well. I bought some black wings, and ended up putting some red glitter glue on them for spots..so I guess I wend as a backwards Ladybug:) I am not sure how many kids there were, but it was a fun time. We had candy, and there were fireworks. We rented a bouncy castle, and there were a few stations. It was a fun time.
I know this is going back, but had a couple for supper sometime in mid-October. Her bday is the end of the month, and I wanted to have them over. We had a nice dinner of lamb and steak, and it was a fun evening.
I started my new job October 20. I really like it. It's perfect..the hours, etc. No pressure..just the type of job I like. The money is nice, too. Not a lot extra, but it helps, for sure. I work Mon-Thurs, in the evenings. I already got a raise!! My boss is really good, too. I talked to him today about having time off to go to Vancouver for ongoing medical issues, and he was totally fine with it. I would try to make appts for Fridays, but most Dr's don't see pts on Fridays..boo hoo.
Our Vancouver trip was short but sweet. I think we were gone for about 28 hours. I made snacks, so we wouldn't stop for lunch on the way down. After church, we quickly cleaned the dental centre, and then headed off. It was a beautiful day, and the traffic was minimal. Stayed with my cousins, and then the next morning, it was off to the BCHWCH. We were late, but we still were there for about 4 hours! They still don't have a concrete answer of if my body could carry a baby or not. They need to figure out why I got sick in the spring. Each specialist seems to have a different answer. They also stated that women who have cardiac problems that get pregnant can have up a 50% chance of dying...not a lovely number, I know. Also, IF I got pregnant, I would have to move to Vancouver (which I knew, anyway), which could be months, or up to a year. They want me to have another MRI (I had already had it booked), more blood tests, etc. They want to look at me and my body as a whole person, and make sure that I am a good candidate health-wise to even go forward. They also said I have a chromosone issue, in that one of my chromosones only has one "X". They say that it could be fine, but they still have to look into it further. They want me to see an geneticist. That's pretty much all they said. They DID say, however, that IF I got pregnant, it wouldn't be the end of the world (well, one Dr said that). Maybe that sounds kind of oxymoronish, but that is what they all said!! So, in a way, we left feeling a bit discouraged, but in a way, we felt good about it. I also have an appt to see an oncologist for my cyst at the beginning of December. So, we are still a ways away from having babies.
We stopped off at VGH, after having some lunch, to get my medical records from when I was born-2 years, which was really neat to read! I actually started crying when I read it. I just can't believe that I went through all of that. I really should have died at birth, or at least soon after. Dad said that one of my specialists who looked after me said that he had never seen so sick a baby survive. I plan to put all the info (or at least most of it) in to a file-folder, and try to re-organize it a bit. Mom wants to look through it, and I want to photocopy some for some of my specialists.
Our trip home took exactly 4 hours, w/ our stopping at Chiliwack. The weather was ok, but it did snow on the way back. Not a whole lot of traffic, though.
I forgot that I haven't written about seeing my GYNE about my cyst. First of all, he said that it could be a hemaguratic cyst, which means that it is just blood-like. If it is, they don't need to do anything, but just keep an eye on it. I really hope that this is the case. He has referred me to an oncologist, b/c if they have to do surgery, then he wants him (Dr. Ehlin) to do it. Dr. Human said that I should never have had that Laporoscopy back in 1996. Dr. Human doesn't think it's cancer (I have been feeling fine for the most part), but he wants me to see him, just in case.
That's all for now, I guess. I will do Day 2 in 30 days of truth next!!
I should probably post about the weather:) Most of the time, the weather has been lovely. The leaves are pretty much all off the trees, but they are on the ground, which I love to see. No snow yet!! Not really a lot of rain, and the sun has been trying to shine nearly every day.
We did end up having the "Light the Night" party the previous Sunday at our church. We thought of not doing, b/c of our friend dying, but the girls' dad said that the girls were looking forward to it. We do this every year, to encourage the kids to come to the church instead of trick or treating. I am sure that some kids go out T&T-ing anyway, but at least it's a place for them to come afterwards. I wasn't going to dress up, but I decided to in the end. About half of the people (adults) dressed up. I ended up going as a ladybug. It was fun getting the costume together, but I wish I had more money to a "real" costume..oh well. I bought some black wings, and ended up putting some red glitter glue on them for spots..so I guess I wend as a backwards Ladybug:) I am not sure how many kids there were, but it was a fun time. We had candy, and there were fireworks. We rented a bouncy castle, and there were a few stations. It was a fun time.
I know this is going back, but had a couple for supper sometime in mid-October. Her bday is the end of the month, and I wanted to have them over. We had a nice dinner of lamb and steak, and it was a fun evening.
I started my new job October 20. I really like it. It's perfect..the hours, etc. No pressure..just the type of job I like. The money is nice, too. Not a lot extra, but it helps, for sure. I work Mon-Thurs, in the evenings. I already got a raise!! My boss is really good, too. I talked to him today about having time off to go to Vancouver for ongoing medical issues, and he was totally fine with it. I would try to make appts for Fridays, but most Dr's don't see pts on Fridays..boo hoo.
Our Vancouver trip was short but sweet. I think we were gone for about 28 hours. I made snacks, so we wouldn't stop for lunch on the way down. After church, we quickly cleaned the dental centre, and then headed off. It was a beautiful day, and the traffic was minimal. Stayed with my cousins, and then the next morning, it was off to the BCHWCH. We were late, but we still were there for about 4 hours! They still don't have a concrete answer of if my body could carry a baby or not. They need to figure out why I got sick in the spring. Each specialist seems to have a different answer. They also stated that women who have cardiac problems that get pregnant can have up a 50% chance of dying...not a lovely number, I know. Also, IF I got pregnant, I would have to move to Vancouver (which I knew, anyway), which could be months, or up to a year. They want me to have another MRI (I had already had it booked), more blood tests, etc. They want to look at me and my body as a whole person, and make sure that I am a good candidate health-wise to even go forward. They also said I have a chromosone issue, in that one of my chromosones only has one "X". They say that it could be fine, but they still have to look into it further. They want me to see an geneticist. That's pretty much all they said. They DID say, however, that IF I got pregnant, it wouldn't be the end of the world (well, one Dr said that). Maybe that sounds kind of oxymoronish, but that is what they all said!! So, in a way, we left feeling a bit discouraged, but in a way, we felt good about it. I also have an appt to see an oncologist for my cyst at the beginning of December. So, we are still a ways away from having babies.
We stopped off at VGH, after having some lunch, to get my medical records from when I was born-2 years, which was really neat to read! I actually started crying when I read it. I just can't believe that I went through all of that. I really should have died at birth, or at least soon after. Dad said that one of my specialists who looked after me said that he had never seen so sick a baby survive. I plan to put all the info (or at least most of it) in to a file-folder, and try to re-organize it a bit. Mom wants to look through it, and I want to photocopy some for some of my specialists.
Our trip home took exactly 4 hours, w/ our stopping at Chiliwack. The weather was ok, but it did snow on the way back. Not a whole lot of traffic, though.
I forgot that I haven't written about seeing my GYNE about my cyst. First of all, he said that it could be a hemaguratic cyst, which means that it is just blood-like. If it is, they don't need to do anything, but just keep an eye on it. I really hope that this is the case. He has referred me to an oncologist, b/c if they have to do surgery, then he wants him (Dr. Ehlin) to do it. Dr. Human said that I should never have had that Laporoscopy back in 1996. Dr. Human doesn't think it's cancer (I have been feeling fine for the most part), but he wants me to see him, just in case.
That's all for now, I guess. I will do Day 2 in 30 days of truth next!!
I should probably post about the weather:) Most of the time, the weather has been lovely. The leaves are pretty much all off the trees, but they are on the ground, which I love to see. No snow yet!! Not really a lot of rain, and the sun has been trying to shine nearly every day.
Wednesday, November 10, 2010
30 Days of Truth..Day 1
****I realized when I was in bed last night that I don't think that regretting quitting the piano really refers to this first question....I guess there are a lot of things that I hate (or dislike/want to change, etc) about myself that could fit into this or any other question....but I was thinking about one that that I don't like, something that I think is very true, and that I wish I could change...
I always seem to take the easy road when things get tough.
This isn't totally true, but it is true in a lot of aspects in my life. I think in part, it is b/c that I am so tired of trying, that I just up and decide to take/do what's easy. But, I think that I am doing better at this...in other areas.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
I am following a blog of a semi-friend of mine, and she is doing 30 days of truth...so that I would be able to find the information, here is the full 30 days of truth..and I will answer each question one at a time..probably not every day..but I will try every couple of days or so...with out further ado..here we go!
Day 1..Something you hate about yourself..
Well, what a good one to start off with, eh?
Hate is a pretty strong word, for sure...and there are certainly lots of different things that I don't like, or wish I could change about myself...but there is one (of many!!) thing that I will always kick myself for (or rather not) doing.
I regret that I quit playing the piano.
I know this isn't a super spiritual or emotional thing, but to me, it is something that I have always wished I had continued. You see, when I was about 5 or 6, I wanted (or mom wanted me to..not sure which) to play the piano. I think Mom was my first teacher, then my gramma. I had a couple of more teachers after Grandma, and they were fine teachers, but I still found it hard. I really just didn't enjoy it. I played it (kicking and screaming, for the most part), until I was about 13 or 14, or maybe even younger. I think I was just plain tired of it, and it was boring. I didn't have the mind for it (or so i thought), so I just quit. Mom said that I had to at least learn to play a hymn before I quit, but I think I even stopped before that. People then were telling me that I would regret stopping, and I (in my teenage wisdom) told them that I wouldn't. Sure enough, when I got into my 20's, I started regretting it. I have thought of picking it up, but I just keep forgetting about it, and basically just haven't. Most of my family can play an instrument. I sometimes feel a bit left out:)
I will blog about my recent Vancouver trip and our recent happenings this weekend.
PS..I just finished reading the entire list, and I am not sure that I will do the ENTIRE 30 days..as some of them sound just too long, and even a bit boring..but I will certainly do most of them!!
Day 01 → Something you hate about yourself.
Day 02 → Something you love about yourself.
Day 03 → Something you have to forgive yourself for.
Day 04 → Something you have to forgive someone for.
Day 05 → Something you hope to do in your life.
Day 06 → Something you hope you never have to do.
Day 07 → Someone who has made your life worth living for.
Day 08 → Someone who made your life hell, or treated you like shit.
Day 09 → Someone you didn’t want to let go, but just drifted.
Day 10 → Someone you need to let go, or wish you didn’t know.
Day 11 → Something people seem to compliment you the most on.
Day 12 → Something you never get compliments on.
Day 13 → A band or artist that has gotten you through some tough ass days. (write a letter.)
Day 14 → A hero that has let you down. (letter)
Day 15 → Something or someone you couldn’t live without, because you’ve tried living without it.
Day 16 → Someone or something you definitely could live without.
Day 17 → A book you’ve read that changed your views on something.
Day 18 → Your views on gay marriage.
Day 19 → What do you think of religion? Or what do you think of politics?
Day 20 → Your views on drugs and alcohol.
Day 21 → (scenario) Your best friend is in a car accident and you two got into a fight an hour before. What do you do?
Day 22 → Something you wish you hadn’t done in your life.
Day 23 → Something you wish you had done in your life.
Day 24 → Make a playlist to someone, and explain why you chose all the songs. (Just post the titles and artists and letter)
Day 25 → The reason you believe you’re still alive today.
Day 26 → Have you ever thought about giving up on life? If so, when and why?
Day 27 → What’s the best thing going for you right now?
Day 28 → What if you were pregnant or got someone pregnant, what would you do?
Day 29 → Something you hope to change about yourself. And why.
Day 30 → A letter to yourself, tell yourself EVERYTHING you love about yourself
I always seem to take the easy road when things get tough.
This isn't totally true, but it is true in a lot of aspects in my life. I think in part, it is b/c that I am so tired of trying, that I just up and decide to take/do what's easy. But, I think that I am doing better at this...in other areas.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
I am following a blog of a semi-friend of mine, and she is doing 30 days of truth...so that I would be able to find the information, here is the full 30 days of truth..and I will answer each question one at a time..probably not every day..but I will try every couple of days or so...with out further ado..here we go!
Day 1..Something you hate about yourself..
Well, what a good one to start off with, eh?
Hate is a pretty strong word, for sure...and there are certainly lots of different things that I don't like, or wish I could change about myself...but there is one (of many!!) thing that I will always kick myself for (or rather not) doing.
I regret that I quit playing the piano.
I know this isn't a super spiritual or emotional thing, but to me, it is something that I have always wished I had continued. You see, when I was about 5 or 6, I wanted (or mom wanted me to..not sure which) to play the piano. I think Mom was my first teacher, then my gramma. I had a couple of more teachers after Grandma, and they were fine teachers, but I still found it hard. I really just didn't enjoy it. I played it (kicking and screaming, for the most part), until I was about 13 or 14, or maybe even younger. I think I was just plain tired of it, and it was boring. I didn't have the mind for it (or so i thought), so I just quit. Mom said that I had to at least learn to play a hymn before I quit, but I think I even stopped before that. People then were telling me that I would regret stopping, and I (in my teenage wisdom) told them that I wouldn't. Sure enough, when I got into my 20's, I started regretting it. I have thought of picking it up, but I just keep forgetting about it, and basically just haven't. Most of my family can play an instrument. I sometimes feel a bit left out:)
I will blog about my recent Vancouver trip and our recent happenings this weekend.
PS..I just finished reading the entire list, and I am not sure that I will do the ENTIRE 30 days..as some of them sound just too long, and even a bit boring..but I will certainly do most of them!!
Day 01 → Something you hate about yourself.
Day 02 → Something you love about yourself.
Day 03 → Something you have to forgive yourself for.
Day 04 → Something you have to forgive someone for.
Day 05 → Something you hope to do in your life.
Day 06 → Something you hope you never have to do.
Day 07 → Someone who has made your life worth living for.
Day 08 → Someone who made your life hell, or treated you like shit.
Day 09 → Someone you didn’t want to let go, but just drifted.
Day 10 → Someone you need to let go, or wish you didn’t know.
Day 11 → Something people seem to compliment you the most on.
Day 12 → Something you never get compliments on.
Day 13 → A band or artist that has gotten you through some tough ass days. (write a letter.)
Day 14 → A hero that has let you down. (letter)
Day 15 → Something or someone you couldn’t live without, because you’ve tried living without it.
Day 16 → Someone or something you definitely could live without.
Day 17 → A book you’ve read that changed your views on something.
Day 18 → Your views on gay marriage.
Day 19 → What do you think of religion? Or what do you think of politics?
Day 20 → Your views on drugs and alcohol.
Day 21 → (scenario) Your best friend is in a car accident and you two got into a fight an hour before. What do you do?
Day 22 → Something you wish you hadn’t done in your life.
Day 23 → Something you wish you had done in your life.
Day 24 → Make a playlist to someone, and explain why you chose all the songs. (Just post the titles and artists and letter)
Day 25 → The reason you believe you’re still alive today.
Day 26 → Have you ever thought about giving up on life? If so, when and why?
Day 27 → What’s the best thing going for you right now?
Day 28 → What if you were pregnant or got someone pregnant, what would you do?
Day 29 → Something you hope to change about yourself. And why.
Day 30 → A letter to yourself, tell yourself EVERYTHING you love about yourself
Friday, October 29, 2010
Sadness
My heart is breaking tonight with some news I heard earlier this morning. I was going to title this blog post "Death", because I have been thinking of death the last few days...what it would be like to lose a child. I actually came upon a blog, who's friends daughter died of a brain tumour (she was 5, I think??). I ended up finding this girls funeral service online, as I wanted to see ballet the girls dance class was doing. It was a very moving service (don't worry, I didn't waste an hour of my time watching some random child's funeral, in case you were thinking I was odd) and it got me thinking of burying your children. A parent should never have to bury their child. I am also following some blogs of BLM's (Baby Loss Mamma's), where their babies were born prematurely, or had pre-existing conditions/diseases in the womb, and were not expected to live. So, every few days or so, I usually glance over them, and read the newest posts. I don't know what is drawing me to these. So, last night, I was restless. I couldn't sleep, and I was thinking of what it would be like if I had to say good bye to a child of my own (ok, yes, this is deep, but I think these things!!), and I couldn't sleep. I always wonder on how I would react, and deal with the situation. I don't know how any parent survives that. So, that is what partially kept me up last night.
I never (well, rarely) have sleepless nights. I usually go to bed as soon as my head hits the pillow. I usually sleep very well. Last night, though, my sleeping machine (well, the mask) was giving me problems. It was bothering my face, etc. I just ended up getting rid of it. I will try again tonight. So, if I do have a sleepless/restless night, I either pray, or just lay there. Now, I know that I will pray. Now, I know why I was restless (actually, I was restless for two nights in a row).
This morning, I got up, and I had plans to meet up w/ a friend for coffee, and had a full day of running errands. I wasn't on Facebook for more than a few minutes, when I received an email from a friend of mine, asking me if I had heard about a mutual friend of ours who had died. I was floored. To make a long story short (I won't go in to details), she was found dead yesterday afternoon(which was why I couldn't sleep two nights ago, either). I am shocked and saddened. She is my age, and has a husband and two beautiful daughters. Although we weren't super close, we were friends, so this is probably the closest friend in my life that I have lost. I have lost people that I knew, but they were either my grandparents (who were both suffering, and it was their time), or people that I really wasn't that close to. Now, my heart is breaking. I saw talked w/ her a couple of weeks ago for about 20 minutes. I saw her last Sunday, but she was busy, then she left, so I never said hello. She is on our list of "fast dial" numbers on our phone. She was someone who I sometimes went to when things weren't going so great. They gave us money to buy our car. I just don't understand it. We were almost in tears this morning. I am not looking forward to the funeral at all:( I would ask you all to pray for the K family. This is hard on our church, as well.
This reminds us all that death is NEVER far from us. It is very near. Sometimes, we think we are immune to death, but as I have come to know from being sick, it is never far. I have to admit, even after being sick, you kind of forget that death could ALWAYS happen!! We are never immune to it.
So, after reading that, I didn't know what to do. I felt guilty even THINKING of going about my day. They don't live in town, so it wasn't like I could go and help out, or be with the girls. I couldn't even make them supper. I did buy a card, and I will mail it to them. It was hard evening standing in that section...I can't even remember when the last time was that I picked out a sympathy card.
I think I will end here for now. There are a few more things to update, but I will save them for another time. I will say that we are doing ok (other than this, of course), and my job is going well:)
PS..I do apologize for my odd wordness at times. It always sounds so nice in my head, but then I forget how I worded when I get here to type it!!
I never (well, rarely) have sleepless nights. I usually go to bed as soon as my head hits the pillow. I usually sleep very well. Last night, though, my sleeping machine (well, the mask) was giving me problems. It was bothering my face, etc. I just ended up getting rid of it. I will try again tonight. So, if I do have a sleepless/restless night, I either pray, or just lay there. Now, I know that I will pray. Now, I know why I was restless (actually, I was restless for two nights in a row).
This morning, I got up, and I had plans to meet up w/ a friend for coffee, and had a full day of running errands. I wasn't on Facebook for more than a few minutes, when I received an email from a friend of mine, asking me if I had heard about a mutual friend of ours who had died. I was floored. To make a long story short (I won't go in to details), she was found dead yesterday afternoon(which was why I couldn't sleep two nights ago, either). I am shocked and saddened. She is my age, and has a husband and two beautiful daughters. Although we weren't super close, we were friends, so this is probably the closest friend in my life that I have lost. I have lost people that I knew, but they were either my grandparents (who were both suffering, and it was their time), or people that I really wasn't that close to. Now, my heart is breaking. I saw talked w/ her a couple of weeks ago for about 20 minutes. I saw her last Sunday, but she was busy, then she left, so I never said hello. She is on our list of "fast dial" numbers on our phone. She was someone who I sometimes went to when things weren't going so great. They gave us money to buy our car. I just don't understand it. We were almost in tears this morning. I am not looking forward to the funeral at all:( I would ask you all to pray for the K family. This is hard on our church, as well.
This reminds us all that death is NEVER far from us. It is very near. Sometimes, we think we are immune to death, but as I have come to know from being sick, it is never far. I have to admit, even after being sick, you kind of forget that death could ALWAYS happen!! We are never immune to it.
So, after reading that, I didn't know what to do. I felt guilty even THINKING of going about my day. They don't live in town, so it wasn't like I could go and help out, or be with the girls. I couldn't even make them supper. I did buy a card, and I will mail it to them. It was hard evening standing in that section...I can't even remember when the last time was that I picked out a sympathy card.
I think I will end here for now. There are a few more things to update, but I will save them for another time. I will say that we are doing ok (other than this, of course), and my job is going well:)
PS..I do apologize for my odd wordness at times. It always sounds so nice in my head, but then I forget how I worded when I get here to type it!!
Tuesday, October 19, 2010
News
Yes, I couldn't find a good title for this blog post!!
Thought I would update on some stuff happening around here. First off..my trip to Vancouver went well. I decided to make it fun, and just enjoy my time. And, for the most part, I did:) I stayed at my cousins, who is fairly close to VGH. I wish I had a ton of money, b/c then I could have walked from Coffee Shop to Coffee shop!! It was fairly nice two of the days I was there. I spent time visiting w/ Kelly and Sarrah, which was really nice. I really hadn't talked much w/ Sarrah (my cousins wife), so it was great to get to know her. I loved spending time w/ their girls. I felt fairly safe walking around Vancouver, and I did a lot of walking, including, walking back from VGH to their house on Thursday!!
My appts went ok..My appt at the MS clinic didn't really bring up anything new. She did say that she thought that I did have MS, but I will have to have another MRI, and an LP sometime. To be honest, that is the last thing on my "worry list", but I do know that I have to get it done. Not sure if I will have the LP here or in Vancouver. The Dr. that will do it is very good, so I will probably get it done here. The MRI is booked for December 15, and that will show if there are any more lesions, etc.
My other tests that I had to see if my body could carry a baby went well. At first, I was a bit stressed, b/c my aBg's (blood gasses) didn't come back that great (high Co2, and low O2), but none of the Dr's have gotten the results back yet, so I am not sure if there is even a need to worry. I also did an over night oxymetry, and no one has the results of that, either. I do see the parinatologist in November, so we will see then what they all think.
I took the bus to Vancouver and back, that was pretty enjoyable. I really don't mind the bus much..I usually enjoy the ride:)
I saw my Internist here in Kamloops, and my ECHO any my ECG came back fine. There is definitely fluid on my abdomen, and she has increased my diuretics, and I hope that will help some. There is also fluid on my pelvic area, and so I went for an U/S in Vernon (more on that in a minute), and I saw my Dr. yesterday, and he said that there is a cyst (or lesion) on my left ovary. So, I am seeing my GYNE sometime SOON (I hope) to get that looked. Not sure if I will have it taken off here or in Vanc. I will have to discuss that with them, I guess. (I have to get re-referred..the one thing I don't like about our Canadian Medical system is that you have to get re-referred for each individual problem..grr!!) I am trying not to worry about it...but I am...I hoping that is just that..a cyst..but I can't help but worry a bit. My cycle is also a mess, and I am wondering if that has something to do w/ it...hoping that when they take it out, my cycle will go back to "normal". (not that it's normal, anyway..but at least it came the same time each month)
I had 4 days in Vancouver, and was home one day, then on the road again to my parents' for Thanksgiving. It was a nice weekend, and we stayed at the B&B, so it was like a bit of a holiday. The food, fun, fellowship were great!! My brother, Luke and his wife were here, so it was fun seeing them. Adam and Krystle were on a vacation, so they were missed.
Anker's birthday was on Friday, so we ended up going to Vernon for my u/s, and then left just as quickly as we came...and then found a pumpkin patch, and picked some pumpkins. We came away with about 7 (gourds included). Saturday, Anker wanted to puree them, so they are now in our freezer, awaiting for me to bake something good with it.
I got a job today! I start tomorrow!! I will be working w/ Big Brothers and Big Sisters, telemarketing for their Renew Crew. I hope it goes well, and that they are flexible w/ me having to go away for med appts, etc. It is in the evening, 20 hours a week Mon-Thursday, so for the most part, unless I have to go to Vancouver, there shouldn't be a problem. I am really hoping that it works, as we could use the money, and it will be nice to get caught up. I am going to try it for a month, and it if it too much (like if I really hate it, it's too much, etc) I will give it up..but I pray not!!
So, we may go out tonight to celebrate. I want to watch a movie, and they have a great deal at our downtown movie theatre..so we may go there.
Oh..back to Anker's bday...after the pumpkin patch, we got back in to Kamloops, and we went out for supper at Lynx Grill. We had never been there before, and it was really good. We will definitely go back!! The dessert was to die for!! (he also got a Tim Horton's GC, of which I am making good use of!)
Things have been crazy in the family, too. Just yesterday, my uncle had a heart attack, and is still in ICU. He was driving his car when it happened, so we are grateful that he didn't kill himself our others while driving.
There have been other things happening as well, but I won't say them here yet...
A couple of weeks ago (can't remember the date) Adam and Krystle were on their way to Vanc, for their holiday, and stayed here for the night. We had a nice time of visiting, and we made them a nice pork dinner. Anker tried a Danish dish, and it was really good. Krystle and I spent the next afternoon hanging out together..going for coffee, a great visit..and checking out the new local library, and even an antique shop. When we got back, Joseph and Cadence were are our house, as they were in Kamloops for a couple of days, and we ended up spending the evening w/ them
Anker got some dental work done (root canal), and the dentist never even charged him!! (It's the dentist he cleans for). He also saw the Ophthalmologist a couple of weeks ago, and will be seeing him again next week, and it looks like he has glaucoma...and he needs glasses terribly. I hope now that with this job, we can find the $$ to get them. We thought of going on Disability, but I really don't think that I could get it, and it would be less $$ than we are making now (granted, we would have our trips to Vanc. paid for, and also our medical and dental paid for), but it looks like I have a job, so I don't have to worry about that now.
I think that's about all for now!!
I will try to update a bit more.
Thought I would update on some stuff happening around here. First off..my trip to Vancouver went well. I decided to make it fun, and just enjoy my time. And, for the most part, I did:) I stayed at my cousins, who is fairly close to VGH. I wish I had a ton of money, b/c then I could have walked from Coffee Shop to Coffee shop!! It was fairly nice two of the days I was there. I spent time visiting w/ Kelly and Sarrah, which was really nice. I really hadn't talked much w/ Sarrah (my cousins wife), so it was great to get to know her. I loved spending time w/ their girls. I felt fairly safe walking around Vancouver, and I did a lot of walking, including, walking back from VGH to their house on Thursday!!
My appts went ok..My appt at the MS clinic didn't really bring up anything new. She did say that she thought that I did have MS, but I will have to have another MRI, and an LP sometime. To be honest, that is the last thing on my "worry list", but I do know that I have to get it done. Not sure if I will have the LP here or in Vancouver. The Dr. that will do it is very good, so I will probably get it done here. The MRI is booked for December 15, and that will show if there are any more lesions, etc.
My other tests that I had to see if my body could carry a baby went well. At first, I was a bit stressed, b/c my aBg's (blood gasses) didn't come back that great (high Co2, and low O2), but none of the Dr's have gotten the results back yet, so I am not sure if there is even a need to worry. I also did an over night oxymetry, and no one has the results of that, either. I do see the parinatologist in November, so we will see then what they all think.
I took the bus to Vancouver and back, that was pretty enjoyable. I really don't mind the bus much..I usually enjoy the ride:)
I saw my Internist here in Kamloops, and my ECHO any my ECG came back fine. There is definitely fluid on my abdomen, and she has increased my diuretics, and I hope that will help some. There is also fluid on my pelvic area, and so I went for an U/S in Vernon (more on that in a minute), and I saw my Dr. yesterday, and he said that there is a cyst (or lesion) on my left ovary. So, I am seeing my GYNE sometime SOON (I hope) to get that looked. Not sure if I will have it taken off here or in Vanc. I will have to discuss that with them, I guess. (I have to get re-referred..the one thing I don't like about our Canadian Medical system is that you have to get re-referred for each individual problem..grr!!) I am trying not to worry about it...but I am...I hoping that is just that..a cyst..but I can't help but worry a bit. My cycle is also a mess, and I am wondering if that has something to do w/ it...hoping that when they take it out, my cycle will go back to "normal". (not that it's normal, anyway..but at least it came the same time each month)
I had 4 days in Vancouver, and was home one day, then on the road again to my parents' for Thanksgiving. It was a nice weekend, and we stayed at the B&B, so it was like a bit of a holiday. The food, fun, fellowship were great!! My brother, Luke and his wife were here, so it was fun seeing them. Adam and Krystle were on a vacation, so they were missed.
Anker's birthday was on Friday, so we ended up going to Vernon for my u/s, and then left just as quickly as we came...and then found a pumpkin patch, and picked some pumpkins. We came away with about 7 (gourds included). Saturday, Anker wanted to puree them, so they are now in our freezer, awaiting for me to bake something good with it.
I got a job today! I start tomorrow!! I will be working w/ Big Brothers and Big Sisters, telemarketing for their Renew Crew. I hope it goes well, and that they are flexible w/ me having to go away for med appts, etc. It is in the evening, 20 hours a week Mon-Thursday, so for the most part, unless I have to go to Vancouver, there shouldn't be a problem. I am really hoping that it works, as we could use the money, and it will be nice to get caught up. I am going to try it for a month, and it if it too much (like if I really hate it, it's too much, etc) I will give it up..but I pray not!!
So, we may go out tonight to celebrate. I want to watch a movie, and they have a great deal at our downtown movie theatre..so we may go there.
Oh..back to Anker's bday...after the pumpkin patch, we got back in to Kamloops, and we went out for supper at Lynx Grill. We had never been there before, and it was really good. We will definitely go back!! The dessert was to die for!! (he also got a Tim Horton's GC, of which I am making good use of!)
Things have been crazy in the family, too. Just yesterday, my uncle had a heart attack, and is still in ICU. He was driving his car when it happened, so we are grateful that he didn't kill himself our others while driving.
There have been other things happening as well, but I won't say them here yet...
A couple of weeks ago (can't remember the date) Adam and Krystle were on their way to Vanc, for their holiday, and stayed here for the night. We had a nice time of visiting, and we made them a nice pork dinner. Anker tried a Danish dish, and it was really good. Krystle and I spent the next afternoon hanging out together..going for coffee, a great visit..and checking out the new local library, and even an antique shop. When we got back, Joseph and Cadence were are our house, as they were in Kamloops for a couple of days, and we ended up spending the evening w/ them
Anker got some dental work done (root canal), and the dentist never even charged him!! (It's the dentist he cleans for). He also saw the Ophthalmologist a couple of weeks ago, and will be seeing him again next week, and it looks like he has glaucoma...and he needs glasses terribly. I hope now that with this job, we can find the $$ to get them. We thought of going on Disability, but I really don't think that I could get it, and it would be less $$ than we are making now (granted, we would have our trips to Vanc. paid for, and also our medical and dental paid for), but it looks like I have a job, so I don't have to worry about that now.
I think that's about all for now!!
I will try to update a bit more.
Saturday, October 2, 2010
Lost and Found!
I really don't feel like blogging tonight, but it HAS been awhile, so I wanted to just do a quick update.
It's been a beautiful few days here...nice and warm, and the leaves are turning, so it is just beautiful.
We had one of my brothers and his wife over the other night, so we cleaned the house like we hadn't cleaned it in awhile...and made a nice supper. I spent the next afternoon w/ K, and we just hung out and did fun things:) Library, an antique store, and coffee:) That evening, my OTHER brother and his wife came, and we visited and ended up having supper together. Then, we looked at old pictures. (more on that later)
Yesterday, a friend of mine called and asked if I wanted to do coffee...I said yes (I hardly EVER refuse coffee dates), and we had a nearly two hour visit. I had a few things to do, including go to the WI clinic to make sure that I don't have a blood clot in my leg. It has been sore since Tuesday, and I was worried about it..thankfully (well, maybe not thankfully, but at least it's not urgent), it's probably a slipped disc, which is odd, b/c my back isn't sore at all. I think my legs are getting better.
I wish I could update you more on our lives, but to be honest..I can't quite remember what I was going to update you on..back in September!!
I am following way too many blogs..I can't get rid of any..does anyone know how to do that??
We attended a wedding of a friend last Saturday. It was a lovely wedding, and we had a fun time. I even got Anker out on the dance floor a couple of times.
Well, on to the title of my post:)
A week ago this last Wednesday, I was at the bathroom at the library, when my engagement ring flew off. I hardly ever wear my rings, b/c they are too big, since i have lost weight, but I had worn them the day before, and I just left them on..well, it flew off. I looked EVERY WHERE..and i was soo upset! I thought for sure that I had flushed it down the toilet..never to see it again. Well, for the wedding we went to, I put on this cheap ring that i had bought years ago, but at least it looked decent. This past Wednesday, I was going out to grab something, when I SEE IT!! It was on the floor, right by closet, under my flip flop! I was sooo excited!! My SIL prayed that I would find it..but I assured her that it was never to be seen again!! Yes, she (well, really God did) had the last word!! LOL.
Also...back to my old pictures..From about the time I got my first real good (film) camera (about 1990-1991), I took a ton of pics...until about 1995-1996. Well, those albums, somehow got misplaced..and i was sure that they were in the garbage. Well, a few weeks ago..my sister tells me that the found some old albums of mine..I just thought that they were record albums. Well, low and behold..what do I see in the back of the Suburban? That's RIGHT!! My albums! Oh man..I wish I had a good scanner..I would put soo many pics on FB:) LOL
I went to Vernon to get an U/S done on my abdomen, and we found out that there is fluid on it..as well as in my pelvic area..lovely. I will see my specialist mid Oct. I also will have an Pelvic U/S on the 15th of October. You can get u/s's soo much quicker than you can here. Crazy!! My friend (who drove me) and I had a great time..sitting in Starbucks (well, outside, actually), talking in the sun...walking the mall, and checking out places on the way back.
I had a date night w/ Anker a few weeks ago..complete w/ candles, and table cloths!! We watched a couple of movies after. Yes, that is what our date nights consist of. I am considering going on PWD. I will check into that when I get back.
Will be having Thanksgiving at the ranch this year..my brother and his new wife will be there...should be fun. I will only be home one day, and then we go out there.
I am heading to Vancouver tomorrow. Was going to be going w/ Anker, but I found out that it is a 4 day thing (one appt that I thought was on Tuesday is on Thursday), so I am staying w/ my cousins, and try to enjoy some time in the big city. I will try to catch up w/ some friends while I am there.
That's about all for now, I think. Nothing really new on the job front..I had an interview, but I don't think that I got it.
It's been a beautiful few days here...nice and warm, and the leaves are turning, so it is just beautiful.
We had one of my brothers and his wife over the other night, so we cleaned the house like we hadn't cleaned it in awhile...and made a nice supper. I spent the next afternoon w/ K, and we just hung out and did fun things:) Library, an antique store, and coffee:) That evening, my OTHER brother and his wife came, and we visited and ended up having supper together. Then, we looked at old pictures. (more on that later)
Yesterday, a friend of mine called and asked if I wanted to do coffee...I said yes (I hardly EVER refuse coffee dates), and we had a nearly two hour visit. I had a few things to do, including go to the WI clinic to make sure that I don't have a blood clot in my leg. It has been sore since Tuesday, and I was worried about it..thankfully (well, maybe not thankfully, but at least it's not urgent), it's probably a slipped disc, which is odd, b/c my back isn't sore at all. I think my legs are getting better.
I wish I could update you more on our lives, but to be honest..I can't quite remember what I was going to update you on..back in September!!
I am following way too many blogs..I can't get rid of any..does anyone know how to do that??
We attended a wedding of a friend last Saturday. It was a lovely wedding, and we had a fun time. I even got Anker out on the dance floor a couple of times.
Well, on to the title of my post:)
A week ago this last Wednesday, I was at the bathroom at the library, when my engagement ring flew off. I hardly ever wear my rings, b/c they are too big, since i have lost weight, but I had worn them the day before, and I just left them on..well, it flew off. I looked EVERY WHERE..and i was soo upset! I thought for sure that I had flushed it down the toilet..never to see it again. Well, for the wedding we went to, I put on this cheap ring that i had bought years ago, but at least it looked decent. This past Wednesday, I was going out to grab something, when I SEE IT!! It was on the floor, right by closet, under my flip flop! I was sooo excited!! My SIL prayed that I would find it..but I assured her that it was never to be seen again!! Yes, she (well, really God did) had the last word!! LOL.
Also...back to my old pictures..From about the time I got my first real good (film) camera (about 1990-1991), I took a ton of pics...until about 1995-1996. Well, those albums, somehow got misplaced..and i was sure that they were in the garbage. Well, a few weeks ago..my sister tells me that the found some old albums of mine..I just thought that they were record albums. Well, low and behold..what do I see in the back of the Suburban? That's RIGHT!! My albums! Oh man..I wish I had a good scanner..I would put soo many pics on FB:) LOL
I went to Vernon to get an U/S done on my abdomen, and we found out that there is fluid on it..as well as in my pelvic area..lovely. I will see my specialist mid Oct. I also will have an Pelvic U/S on the 15th of October. You can get u/s's soo much quicker than you can here. Crazy!! My friend (who drove me) and I had a great time..sitting in Starbucks (well, outside, actually), talking in the sun...walking the mall, and checking out places on the way back.
I had a date night w/ Anker a few weeks ago..complete w/ candles, and table cloths!! We watched a couple of movies after. Yes, that is what our date nights consist of. I am considering going on PWD. I will check into that when I get back.
Will be having Thanksgiving at the ranch this year..my brother and his new wife will be there...should be fun. I will only be home one day, and then we go out there.
I am heading to Vancouver tomorrow. Was going to be going w/ Anker, but I found out that it is a 4 day thing (one appt that I thought was on Tuesday is on Thursday), so I am staying w/ my cousins, and try to enjoy some time in the big city. I will try to catch up w/ some friends while I am there.
That's about all for now, I think. Nothing really new on the job front..I had an interview, but I don't think that I got it.
Sunday, September 12, 2010
(Re) Welcome to my (our) blog, Why do I have a blog, and Our Vancouver Trip.
Thanks to everyone for wanting to be on my blogging list!! I hope you don't think that I am trying to "celebrate" myself, or anything, but I thought some people may want to know what is going on with us, and my health, etc, and this a more confined, private way to do that. This is more than just a health update on me, it is also about my thoughts, and our life. I don't want to put a lot of my health info on Facebook, so I thought if anyone wants, I would give them an opportunity to be a reader:) If you don't want to be a reader, then please just let me know, and I can take you off the list. I may decide to make this public, but right now, I will just have it private. I usually let ppl know when I have blogged on Facebook, so you don't have to keep looking every day to see if there has been an update. I won't post pics, b/c frankly, I don't know how:) I also just want to let you know that the things I say here, I don't always want everyone on FB to know, so basically, what I say here, stays here:) ( I am sure you won't refer to anything -re:events, health concerns, etc- on my page, anyway..but just want to clarify). I will put SOME things on here..like I have been doing.
Someone asked me why I had a blog. I tried to explain to her why, and to be honest, I couldn't come up w/ an answer. I think it is a way to a) Share some of my thoughts on "paper", not even caring if anyone reads it. b) IF anyone is interested, especially for ppl far away, they can have an update on us. c) Maybe what I am going through (health, finances, etc) will help someone else, to be an encouragement d) IF we end up having a baby, it is a way to document, and update ppl, w/o everyone in Facebook-land knowing!! I hope that helps you understand a bit why I (we) have one:) I don't update this every week..maybe once or twice a month, if anything exciting is going on!
Ok....Let's start off w/ the Vancouver trip. Actually, first, I have to talk about our car. Back before I got sick (February, maybe??), our car started getting really noisy. (As if you were in an airplane.) Well, b/c we are pretty financially strapped, we didn't do anything about it. So, we drove it all summer, with no incident. About a week or so before we left, some lights came on, and they wouldn't come off. I didn't think much about it, since they had done it before, and nothing was wrong. Well, Anker found out that something WAS wrong!After talking w/ a mechanic friend of ours, we found out that the Wheel bearings were going:( So, off to the parts store he went...and nearly $350 later, he fixed our car!! The passenger side was totally shot!! It purrs like a kitty cat now! We now have something else wrong w/ it, but that is for a whole other post!!
Saturday afternoon (August 28), we set out to Vancouver. Since Anker's sister and her family were busy that night, we called up my 2nd cousin and asked to meet up w/ them for the evening. After hanging out at the mall, and getting an iced tea, we met up w/ N, and we drove to her house. We had a lovely evening, visiting, and meeting her husband, J, and their kitties:) Later Saturday night, we went over to Anker's sisters, and spent sometime visiting. This will be probably the last time we stay there, as they are moving to Victoria:( Oh well, at least we have a reason to go there now!!
Sunday, after a nice breakfast, we went to the PNE. I really didn't want to go, since financially, we really couldn't afford it. His sister helped a bit, so that was nice. We didn't do any rides, and bought minimal foods (we realised later that we should have just gone to McD's for supper, oh well), and didn't buy any items. It was a perfect day, w/ minimal sun (which was fine w/ me, since I was wearing pants), and lots of cloud. I walked all over, and the only thing hurting at the end were my feet!! I think the best thing I enjoyed was the RCMP Musical Ride. It was totally worth it!! We also saw the Super Dogs, and some Acrobats:) We ended up staying for the night showing, which was pretty fun. It was their 100th year anniversary, so it was kind of nice to go:)
Monday, was my first day of appointments. I have realized that you can really only fit 2 appts in one day, otherwise, it is too much, and they would get missed (due to timing). We went to BC Women's and Children's Hospital for our first appointment. I saw an internal medicine specialist, specializing in obstetrics (I think that it was she was called). This was because my specialist here wanted me to see them, regarding my having kids. He doesn't think I should (a couple of my dr's don't think the same thing). That appointment took nearly three hours. Nice. They took a lot of time w/ us, and asked us a lot of questions, and we asked them a few. After that, we went for lunch. Quickly grabbed a pizza at "The Flying Wedge", and it was so nice, that we ate outside. We then went to VGH (The Eye Care Centre, but same diff), to a neuro-ophthalmologist. (an eye doctor that specializes in the nervous system) One of the Dr's that saw me while I was at VGH wanted me to see one, b/c she thought my eye was twitching. Again, they took a long time examining me, and they didn't seen anything that wasn't congenital (yes, that is a word..it means from birth). It was there that Anker got sick..his allergies, he thought. So we quickly went to a mall to get some meds. Had a quiet evening...supper, movie, reading at his sisters house.
Tuesday, we got up early, and had to clean up, as they were having a showing at their house that day. We said our good byes that morning. Our appt was at 9 am at BCWCH. Off we went, where Anker found free parking!! Saw Dr. Skoll, a pari-natologist, a Dr. who deals w/ pre-pregnancy patients. She was really great, again asking us questions, and answering the ones we had. We told them that were against abortion, and would carry the baby to term. She did say that I could not have twins, so, b/c we will probably have fertility meds, that is a risk we would take. I hope that is a decision that I won't have to make. (to abort a baby) So...I have to do some tests (ECHO, ECG, over night oxemitry), which can be done while we are there Oct 4, for my MS follow up and for my pulmonologist follow up, and then I will also see a medical geneticist sometime as well. Dr. Skoll was very please that we were making an informed decision. She also told me that I would have the baby at St. Pauls, as that is for high risk pregnancies. There is also a chance that we would move, even if it's the last part of the pregnancy, as I would want/need to be close to the hospital:) (or even be IN the hospital) We would try to let me carry the baby to term, or as long I can. If for some reason that I was absolutely unable to have kids, then we would need to make some decisions, but hopefully won't have to happen.
Some of you may ask "what about adoption?" Well, there are a few reasons.. the main one is that it can take 1- 5 yrs for a child, if adopted through BC ministry. We don't have that long..Anker is almost 48, and I don't to start a family when he is 52. We also would like a baby, or a younger (3 and under) child, and I don't think that there are a lot of children that age that are waiting. Also, you don't really know the child has gone through, or if they have been exposed to drugs, alcohol or abuse...but the last part is really not a huge worry...it's mainly the first two reasons....
So, back to Tuesday..after our first appt...we went to Granville Island, as it was POURING rain! What's a trip Vanc, w/o some rain, right?? We had a fun time, though..looking around, and again..not buying anything!! It was around this time, that I decided that I should cancel meeting up w/ my friend. I felt bad, but as it was raining, and Anker not feeling well, I decided that it would be best to cancel it. I gave her a quick call to let her know that it wouldn't work out. In the end, it was a good decision. I hope we can meet up next time. We then went back to VGH, as I had to see the Neurologist. Unfortunately, I made a mistake and cancelled the first half of my appointment with the metabolic clinic. I didn't realize that was a big part of the appointment. Thankfully, they were still able to take me, and we spent a lot of time answering questions, etc. I also had to have an EMG, but they weren't able to do my diaphragm, b/c of my being on Blood Thinners, so in a way, it was a bit of a waste. We still don't know what caused me to get sick. It could either be respiratory, muscular, or neurological. I think we won't ever find out. Anyhoo...still, more tests, more appts:(
The trip home was trying. We left VGH at 4, and got into Chiliwack at 6. That was thanks to construction, etc. It rained until the Summit, and it was ok after that. Poor Anker got quite sick:( We quickly grabbed some supper when we got home (we hadn't eaten much all day), and got in around 9 or so.
So, that was our trip. Since this is a long post, I will blog again SOON about what we have been doing.
Just a side note..I managed to get Anker's cold, but thankfully, I was able to sleep quite well at night, thanks to "Frank". It acts like a humidifier, so it loosens things up (sorry...TMI??). We are both better now..still have some coughing..but nothing too major.I should also mention that there IS free parking in Vancouver. Anker found a FREE space just across from the hospital..nice:)
ONE LAST THING:) I am getting an abdominal ultra sound in Vernon on the 20th, just to make sure that there is no fluid (I think there could be..one of the drs in Vanc did say there might be a bit). You can get one there in about 2 wks, which makes me wonder..why don't more ppl go to Vernon/Kelowna/Merritt??
Someone asked me why I had a blog. I tried to explain to her why, and to be honest, I couldn't come up w/ an answer. I think it is a way to a) Share some of my thoughts on "paper", not even caring if anyone reads it. b) IF anyone is interested, especially for ppl far away, they can have an update on us. c) Maybe what I am going through (health, finances, etc) will help someone else, to be an encouragement d) IF we end up having a baby, it is a way to document, and update ppl, w/o everyone in Facebook-land knowing!! I hope that helps you understand a bit why I (we) have one:) I don't update this every week..maybe once or twice a month, if anything exciting is going on!
Ok....Let's start off w/ the Vancouver trip. Actually, first, I have to talk about our car. Back before I got sick (February, maybe??), our car started getting really noisy. (As if you were in an airplane.) Well, b/c we are pretty financially strapped, we didn't do anything about it. So, we drove it all summer, with no incident. About a week or so before we left, some lights came on, and they wouldn't come off. I didn't think much about it, since they had done it before, and nothing was wrong. Well, Anker found out that something WAS wrong!After talking w/ a mechanic friend of ours, we found out that the Wheel bearings were going:( So, off to the parts store he went...and nearly $350 later, he fixed our car!! The passenger side was totally shot!! It purrs like a kitty cat now! We now have something else wrong w/ it, but that is for a whole other post!!
Saturday afternoon (August 28), we set out to Vancouver. Since Anker's sister and her family were busy that night, we called up my 2nd cousin and asked to meet up w/ them for the evening. After hanging out at the mall, and getting an iced tea, we met up w/ N, and we drove to her house. We had a lovely evening, visiting, and meeting her husband, J, and their kitties:) Later Saturday night, we went over to Anker's sisters, and spent sometime visiting. This will be probably the last time we stay there, as they are moving to Victoria:( Oh well, at least we have a reason to go there now!!
Sunday, after a nice breakfast, we went to the PNE. I really didn't want to go, since financially, we really couldn't afford it. His sister helped a bit, so that was nice. We didn't do any rides, and bought minimal foods (we realised later that we should have just gone to McD's for supper, oh well), and didn't buy any items. It was a perfect day, w/ minimal sun (which was fine w/ me, since I was wearing pants), and lots of cloud. I walked all over, and the only thing hurting at the end were my feet!! I think the best thing I enjoyed was the RCMP Musical Ride. It was totally worth it!! We also saw the Super Dogs, and some Acrobats:) We ended up staying for the night showing, which was pretty fun. It was their 100th year anniversary, so it was kind of nice to go:)
Monday, was my first day of appointments. I have realized that you can really only fit 2 appts in one day, otherwise, it is too much, and they would get missed (due to timing). We went to BC Women's and Children's Hospital for our first appointment. I saw an internal medicine specialist, specializing in obstetrics (I think that it was she was called). This was because my specialist here wanted me to see them, regarding my having kids. He doesn't think I should (a couple of my dr's don't think the same thing). That appointment took nearly three hours. Nice. They took a lot of time w/ us, and asked us a lot of questions, and we asked them a few. After that, we went for lunch. Quickly grabbed a pizza at "The Flying Wedge", and it was so nice, that we ate outside. We then went to VGH (The Eye Care Centre, but same diff), to a neuro-ophthalmologist. (an eye doctor that specializes in the nervous system) One of the Dr's that saw me while I was at VGH wanted me to see one, b/c she thought my eye was twitching. Again, they took a long time examining me, and they didn't seen anything that wasn't congenital (yes, that is a word..it means from birth). It was there that Anker got sick..his allergies, he thought. So we quickly went to a mall to get some meds. Had a quiet evening...supper, movie, reading at his sisters house.
Tuesday, we got up early, and had to clean up, as they were having a showing at their house that day. We said our good byes that morning. Our appt was at 9 am at BCWCH. Off we went, where Anker found free parking!! Saw Dr. Skoll, a pari-natologist, a Dr. who deals w/ pre-pregnancy patients. She was really great, again asking us questions, and answering the ones we had. We told them that were against abortion, and would carry the baby to term. She did say that I could not have twins, so, b/c we will probably have fertility meds, that is a risk we would take. I hope that is a decision that I won't have to make. (to abort a baby) So...I have to do some tests (ECHO, ECG, over night oxemitry), which can be done while we are there Oct 4, for my MS follow up and for my pulmonologist follow up, and then I will also see a medical geneticist sometime as well. Dr. Skoll was very please that we were making an informed decision. She also told me that I would have the baby at St. Pauls, as that is for high risk pregnancies. There is also a chance that we would move, even if it's the last part of the pregnancy, as I would want/need to be close to the hospital:) (or even be IN the hospital) We would try to let me carry the baby to term, or as long I can. If for some reason that I was absolutely unable to have kids, then we would need to make some decisions, but hopefully won't have to happen.
Some of you may ask "what about adoption?" Well, there are a few reasons.. the main one is that it can take 1- 5 yrs for a child, if adopted through BC ministry. We don't have that long..Anker is almost 48, and I don't to start a family when he is 52. We also would like a baby, or a younger (3 and under) child, and I don't think that there are a lot of children that age that are waiting. Also, you don't really know the child has gone through, or if they have been exposed to drugs, alcohol or abuse...but the last part is really not a huge worry...it's mainly the first two reasons....
So, back to Tuesday..after our first appt...we went to Granville Island, as it was POURING rain! What's a trip Vanc, w/o some rain, right?? We had a fun time, though..looking around, and again..not buying anything!! It was around this time, that I decided that I should cancel meeting up w/ my friend. I felt bad, but as it was raining, and Anker not feeling well, I decided that it would be best to cancel it. I gave her a quick call to let her know that it wouldn't work out. In the end, it was a good decision. I hope we can meet up next time. We then went back to VGH, as I had to see the Neurologist. Unfortunately, I made a mistake and cancelled the first half of my appointment with the metabolic clinic. I didn't realize that was a big part of the appointment. Thankfully, they were still able to take me, and we spent a lot of time answering questions, etc. I also had to have an EMG, but they weren't able to do my diaphragm, b/c of my being on Blood Thinners, so in a way, it was a bit of a waste. We still don't know what caused me to get sick. It could either be respiratory, muscular, or neurological. I think we won't ever find out. Anyhoo...still, more tests, more appts:(
The trip home was trying. We left VGH at 4, and got into Chiliwack at 6. That was thanks to construction, etc. It rained until the Summit, and it was ok after that. Poor Anker got quite sick:( We quickly grabbed some supper when we got home (we hadn't eaten much all day), and got in around 9 or so.
So, that was our trip. Since this is a long post, I will blog again SOON about what we have been doing.
Just a side note..I managed to get Anker's cold, but thankfully, I was able to sleep quite well at night, thanks to "Frank". It acts like a humidifier, so it loosens things up (sorry...TMI??). We are both better now..still have some coughing..but nothing too major.I should also mention that there IS free parking in Vancouver. Anker found a FREE space just across from the hospital..nice:)
ONE LAST THING:) I am getting an abdominal ultra sound in Vernon on the 20th, just to make sure that there is no fluid (I think there could be..one of the drs in Vanc did say there might be a bit). You can get one there in about 2 wks, which makes me wonder..why don't more ppl go to Vernon/Kelowna/Merritt??
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